- About us
- IHK Services
- Meet our doctors
- Patient Information
- Press Corner
- Contact us
What started as a headache for Nshuti has now been diagnosed as a life threatening tumor sitting on the central nervous system. He has had two surgery operations at International Hospital Kampala since 9th October 2015. Even though the tumor was successfully removed, it is growing again.
The young couple has sold almost everything they owned in a bid to save little Nshunti’s life. They can afford a smile here and a joke there. But there is a sense of helpless with which they speak. You almost feel they wish they could take the child’s pain on his behalf. The family is now appealing for financial help to save their son, as Akababyeyi narrates.
It was on Thursday 01/10/2015 when Isaiah’s school teacher called us and told us that he (Isaiah) was vomiting incessantly. We rushed and took him to Bugolobi Middle East Medical Centre. He was treated of urinary infection.
He also had a headache which refused to go away even after treatment. The following day, on 02/10/2015, we took him to Lubaga Hospital. There, he was treated of an infection. But when we got home, the condition worsened again. So we again rushed to Lubaga hospital. Meanwhile, his headache intensified. By now, we were getting even more nervous. He was in a frightening condition.
Many tests were done including a meningitis test which turned positive. He was immediately given treatment that was expected to last 13 days. Meningitis treatment relieved him of pain temporarily.
On Wednesday 7th October 2015, a CT scan was requested and done at Kampala Hospital. Its results showed that he had a tumor in on the central nervous system and that it was in a delicate position. The doctors told us that he needed urgent surgery.
Doctors at Kampala Hospital agreed to have the child operated on as a matter of urgency that week on Saturday by one Dr. Muhumuza. After admission on Friday, the child who looked healthy after 30 minutes, started having breathing problems. Before we could digest this in, he got worse until he went into coma.
Kampala Hospital did not have a life saving machine to help him. In fact, the hospital at some point pronounced him dead. Luckily, after some hours of hopelessness, his heart started beat slowly.
Great efforts were made to have him transfer to a Hospital with Children Vent machines. Initially, although the Kampala Hospital doctor believed he is dead, our instinct told us he was still alive as parents. We believed he was sleeping. The doctor kept telling us that if at all he is alive, then chances of him to be alive were completely slim. But our instinct was right. He was not dead.
My son was in a delicate situation. It necessitated a fully equipped ambulance with a complete vent system. However, most ambulances that could have been which proved futile as most ambulances could not manage his situation.
At around 2:00 am; in what seemed like the eleventh hour; an International Hospital Kampala (IHK) ambulance arrived with their Senior Doctor, Director for Medical services and also senior Child Intensive pediatrician Dr. Michael Muhame.
Despite pleas from the Kampala Hospital doctor that the child is dead, Dr. Muhame insisted on transferring him to their ICU. He assured us (parents) to let him transfer him and that the child would be okay in God’s name.
AT IHK INTENSIVE CARE UNIT
A number of doctors attended to him for several hours. At about 4:00am we were informed that he is stable and at 8:00 am, a Neuro-surgeon (Dr. Joel Kiryabwire) arrived to assess him and told us he was stable and that he is ready for the operation to release waters in his head and thereafter when he is well we continue to think and plan about the operation to remove the tumor.
Early morning Saturday 10/10/2015, the operation was successfully done.
On Wednesday 14/10/2015 he was discharged from ICU to the general ward.
However, his condition became critical again and was rushed to ICU. An assessment by the neurosurgeon showed that he cannot live with the tumour still in his head and until it’s removed, he had to remain in ICU. The tumor was sitting on the central nerve system and it pressed too much pressure on the head.
Both doctors from Mulago and International Hospital Kampala finally agreed that the child had to remain in IHK in ICU if he was to have chances of survival.
The delicate location of the tumor prompted Dr. Kiryabwire the surgeon to mobilize another team of surgeons within the East African region to have an operation carried out. The size of the tumor was big. You know the average bottle of normal medicine syrup bottle?
Yes, that is how big it was. The operation took about seven hours. But it was successfully done. It was quite a unique and complex one as described by the surgeons. It was also described as challenging during the seven hours it was carried out. Ideally, this operation could have done in India. But given my boy’s health and the emergence required, this had to be done to save the situation.
Because of risk of infections that one is bound to get by keeping in the hospital environment, the Neuro-Surgeons and other doctors requested the IHK management to let the child recover fully from home and visit the hospital weekly for his review.
We were allowed to move with some hospital equipment and tubes in him that were later removed as he showed fast recovery progress at home. We got discharged without clearing all the bills upon the doctor’s request to management. Since then we report weekly to the Neuro-Surgeon at IHK for reviews.
THE TUMOR IS GROWING AGAIN!
However, recently, doctors discovered a 1 cm tumor in his head through an MRI Scan that they are closely monitoring with possibility to have a radiotherapy and chemotherapy done on him in either Nairobi or another country. Both Mulago and IHK teams of doctors are studying this unique case that could possibly be handled well in developed countries.
A ‘tumor board’ meeting in Mulago is expected to tell us the next step.
Doctors say it’s a unique case which has attracted international specialists for further studies. In summary, my Isaiah has had two surgery operations at IHK since 9th October 2015 and has been admitted at IHK for over three Months with close to two months in the Intensive Care Unit (ICU).
However, Isaiah’s treatment will cost him close to sh100 m. meanwhile, we also need to clear bills at IHK. The hospital demands over sh70m. My son has no health insurance and no other means of paying for his life saving treatment. We have so far raised sh30m from relatives and other contributions from people.
We humbly appeal to good Samaritans out there for kindness and generosity by contributing financially towards the Hospital bills to enable Isaiah continue with the required treatment and medical care.
We appeal to you our beloved president to support and save little Nshuti Isaiah life to get the diagnosis in order for him to have full recovery. If there are any good Samaritans out there, we kindly request for your generous and kind support.
Our contacts are: +256772882896, +256782759773, +256704735394. firstname.lastname@example.org
000-017 000-080 000-089 000-104 000-105 000-106 070-461 100-101 100-105 , 100-105 , 101 101-400 102-400 1V0-601 1Y0-201 1Z0-051 1Z0-060 1Z0-061 1Z0-144 1z0-434 1Z0-803 1Z0-804 1z0-808 200-101 200-120 200-125 , 200-125 , 200-310 200-355 210-060 210-065 210-260 220-801 220-802 220-901 220-902 2V0-620 2V0-621 2V0-621D 300-070 300-075 300-101 300-115 300-135 3002 300-206 300-208 300-209 300-320 350-001 350-018 350-029 350-030 350-050 350-060 350-080 352-001 400-051 400-101 400-201 500-260 640-692 640-911 640-916 642-732 642-999 700-501 70-177 70-178 70-243 70-246 70-270 70-346 70-347 70-410 70-411 70-412 70-413 70-417 70-461 70-462 70-463 70-480 70-483 70-486 70-487 70-488 70-532 70-533 70-534 70-980 74-678 810-403 9A0-385 9L0-012 9L0-066 ADM-201 AWS-SYSOPS C_TFIN52_66 c2010-652 c2010-657 CAP CAS-002 CCA-500 CISM CISSP CRISC EX200 EX300 HP0-S42 ICBB ICGB ITILFND JK0-022 JN0-102 JN0-360 LX0-103 LX0-104 M70-101 MB2-704 MB2-707 MB5-705 MB6-703 N10-006 NS0-157 NSE4 OG0-091 OG0-093 PEGACPBA71V1 PMP PR000041 SSCP SY0-401 VCP550 000-106 70-177 3002 810-403 300-209 070-461 OG0-091 300-320 352-001 640-916 1Z0-803 VCP550 70-480 350-060 MB2-707 70-270 70-486 1Z0-144 352-001 070-461 N10-006 70-534 CRISC 300-208 CISM